Links & Resources


 

Table of Contents

 

Federal Resources

Additional Federal Resources

National Organizations

Online ResourcesTreatment and Referral Resources

Family and Support Groups

 

 

Federal Resources

Stop Underage Drinking

StopAlcoholAbuse.Gov is a comprehensive portal of Federal resources for information on underage drinking and ideas for combating this issue. People interested in underage drinking prevention—including parents, educators, community-based organizations, and youth—will find a wealth of valuable information here.

Additional Federal Resources

Alcohol Policy Information System

The Alcohol Policy Information System provides information on alcohol-related Federal and State policies. It is sponsored by the National Institute on Alcohol Abuse and Alcoholism as a tool for researchers.

Centers for Disease Control and Prevention (CDC) CDC FASD Site

CDC addresses fetal alcohol syndrome (FAS) through the activities of its FAS program, which focuses on prevention. CDC also hosts the National Task Force on FAS/Fetal Alcohol Effect. In addition, diagnostic guidelines are now available online in PDF format.

Computer Retrieval of Information on Scientific Projects (CRISP)

CRISP is a searchable database of federally funded biomedical research projects, including projects related to fetal alcohol syndrome and effects of alcohol on the fetus.

Congressional Caucus on Fetal Alcohol Spectrum Disorders

The mission of the Congressional Caucus on Fetal Alcohol Spectrum Disorders is to educate Members of the United States House of Representatives on issues relevant to preventing fetal alcohol spectrum disorders and increasing the quality of life for those currently living with these debilitating birth defects.

Department of Education

The Department of Education works to oversee, coordinate, improve, and promote public education at the Federal, State, and local level. The department includes the Office of Special Education and Rehabilitative Services and the Office of Vocational and Adult Education.

Grants.gov

Grants.gov provides organizations with the ability to search for Federal Government-wide grant opportunities.

Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau (MCHB)

Within the Maternal and Child Health Bureau, the Division of Perinatal Systems and Women's Health conducts activities related to FAS prevention.

Homelessness Resource Center

The Homelessness Resource Center is an interactive community of providers, consumers, policymakers, researchers, and public agencies at federal, state, and local levels. They share state-of-the art knowledge and promising practices to prevent and end homelessness.

Indian Health Service (IHS)

The Indian Health Service Behavioral Health Program strives to eliminate alcoholism and other drug dependencies and improve the health care of American Indians and Alaska Natives.

Interagency Coordinating Committee on Fetal Alcohol Syndrome (ICCFAS)

ICCFAS is hosted by the National Institute on Alcohol Abuse and Alcoholism. It includes representatives from various branches of the Department of Health and Human Services, and the Departments of Education and Justice. ICCFAS members work to exchange information and coordinate Federal FAS strategies and programs.

National Institute on Alcohol Abuse and Alcoholism (NIAAA)

NIAAA supports research to improve diagnosis and assessment of impairment and disability and to develop tools to enhance academic and daily living skills. Areas of research include screening, diagnosis, and treatment of FASD.

National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect

The National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect is hosted by CDC. The Task Force fosters coordination of activities related to FASD among government agencies, academic bodies, and community groups.

National Organizations

American Pregnancy Association

The American Pregnancy Association is a national health organization committed to promoting reproductive and pregnancy wellness through education, research, advocacy and community awareness.

Child Welfare League of America (CWLA)

CWLA is an association of almost 1,200 agencies that provide services to at-risk children and families, including kinship care, juvenile justice, foster care, adoption, youth development, residential care, day care, family-centered practice, and adolescent pregnancy prevention.

March of Dimes Birth Defects Foundation

March of Dimes researchers, volunteers, educators, outreach workers, and advocates work together to address prematurity, birth defects, and low birthweight.

National Association for Children of Alcoholics (NACoA)

The mission of the NACoA is to advocate for all children and families affected by alcoholism and other drug dependencies. They help kids hurt by parental alcohol and drug use by working to raise public awareness; providing leadership in public policy at the national, state, and local levels; advocating for appropriate, effective and accessible education and prevention services; and facilitating and advancing professional knowledge and understanding.

National Association of Social Workers (NASW)

NASW is the largest membership organization of professional social workers in the world. NASW works to enhance the professional development of its members, create and maintain professional standards, and advance sound social policies.

National Birth Defects Prevention Network (NBDPN)

NBDPN is a group of individuals involved in birth defects surveillance, research, and prevention. The State directory provides contact and program information, including FASD surveillance information.

National Council on Alcoholism and Drug Dependence (NCADD)

NCADD fights the stigma and the disease of alcoholism and other drug addictions. Activities include community prevention and education, advocacy, and resource centers.

National Healthy Mothers, Healthy Babies Coalition (HMHB)

HMHB promotes public awareness and education about prenatal health, develops networks for sharing information, and distributes public and professional education materials.

National Organization on Fetal Alcohol Syndrome (NOFAS)

NOFAS is a nonprofit organization dedicated to eliminating alcohol-related birth defects and improving the quality of life for individuals with FASD and their families.

Organization of Teratology Information Services (OTIS)

Teratology Information Services (TIS) are comprehensive resources for medical consultation on prenatal exposures to drugs, medications, chemicals, and other substances. TIS interpret information regarding reproductive risks into risk assessments that are communicated to individuals and health care providers.

The Arc of the United States

The Arc is the national organization of and for people with mental retardation and related developmental disabilities and their families.

Online Resources

FAS Community Resource Center

The FAS Community Resource Center offers resources related to FASD, such as support groups for families, playgroups for children with FASD, advocacy, materials and training for families and professionals, consultation, and collaboration with community organizations.

FASD Awareness Day

FASD Awareness Day is observed each year on September 9 to raise awareness in every community about fetal alcohol spectrum disorders (FASD). This site provides ideas and information on planning FASD Awareness Day activities.

FASLink

FASlink is the Canadian Fetal Alcohol Syndrome Internet support, information, advocacy, and discussion forum. FASlink maintains a discussion listserv serving hundreds of families and professionals across Canada and in other countries.

Journal of FAS International

This is the only journal devoted solely to fetal alcohol spectrum disorders. It publishes peer-reviewed original papers, as well as case reports, reviews, and critical assessments of papers from other publications. Its editorial board includes noted Canadian and U.S. researchers and clinicians.

National Clearinghouse for Alcohol and Drug Information (NCADI)

NCADI is operated by the Substance Abuse and Mental Health Services Administration. It has one of the largest repositories of alcohol and drug information in the world and offers access to current literature, research reports, and educational resources. NCADI also has a toll-free line.

National Database of FAS and Substance Use During Pregnancy Resources (Canada)

This is a database of Canadian resources related to prevention, intervention, and identification of fetal alcohol syndrome and other substances that can harm fetal development.

Online Clinic

The Online Clinic has information on books, Web sites, and other resources and patient referrals. Various tools are available, including an online calculator for estimating costs of FASD in your community.

Treatment and Referral Resources

Addiction Technology Transfer Center National Office

The Addiction Transfer Technology Center Network is dedicated to identifying and advancing opportunities for improving addiction treatment. The vision is to unify science, education and service to transform the lives of individuals and families affected by alcohol and other drug addiction.

National Organization on Fetal Alcohol Syndrome National and State Directory

Topics include Community Resources and Family Support Groups, Diagnosis of FAS/E and ARND, Prevention Programs, Including Treatment for Women, and Treatment Services for Affected Individuals.

One Sky Center, The American Indian/Alaska Native National Resource Center for Substance Abuse

The mission of the One Sky Center is to improve prevention and treatment of substance abuse among Native people, by promoting culturally appropriate services, identifying and disseminating evidence-based practices, and providing training and technical assistance.

Substance Abuse Treatment Facility Locator

The Substance Abuse and Mental Health Services Administration provides this online resource. The treatment facility locator lists private and public facilities that are licensed, certified, or otherwise approved.

Family and Support Groups

FAS Family Resource Institute (FAS FRI)

FAS FRI is a nonprofit organization providing advocacy, support, and information to individuals and families affected by prenatal alcohol exposure.

FAS/E Support Network of British Columbia

The FAS/E Support Network of British Columbia provides information, support, and education for families, professionals, and the community on prevention and intervention for FASD.

FASEout Training Modules (FASEout) Canadian Institute of Child Health (CICH)

FASEout Training Modules is part of the Canadian Institute of Child Health. This site provides PowerPoint training modules used in the FASEout Project and are provided for your use in training. FASEout, presentations have speaking notes and we encourage you to adapt this material for your own use. Additional presentations are included for informational purposes only. All presentations require a familiarity with the subject.

FASworld

FASworld is an international alliance of parents and professionals dedicated to the prevention of fetal alcohol spectrum disorders. FASworld Canada works with the Fetal Alcohol Syndrome Community Resource Center in Tucson to coordinate work in worldwide awareness.

Iceberg (FAS newsletter)

Iceberg is a quarterly international educational newsletter published by the Fetal Alcohol Syndrome Information Service, a parent/professional partnership.

Maternal and Child Health Library (MCH) Preconception and Pregnancy Knowledge Path

The MCH Library at Georgetown University provides accurate and timely information including the weekly newsletter MCH Alert, resource guides, full text publications, databases, and links to quality MCH sites. Knowledge paths on maternal and child health-related topics contain selections of recent, high quality resources and tools for staying abreast of new developments and conducting further research. Components of a knowledge path include links to Web sites, electronic publications, databases, and discussion groups.

Parent Support Groups

The University of Washington Fetal Alcohol and Drug Unit provides this list of support groups in the United States, Canada, and several other countries.

PARENTS, Inc.

PARENTS is a partnership of Alaska families with disabilities that provides support, training resources, and advocacy statewide. Educational packets on FAS are available.


Other Resources

cordbloodbanking.com

provides the latest up-to-date information and free resources for expecting parents. There have been over 35,000 cord blood transplants thanks to donors worldwide. With more awareness we can increase this number and further save the lives of children suffering from cancer and other serious illnesses.

















 

 

 
Comments